Entry Number 2 – My History
Well, so far I’ve had three readers of my first post. Whether they clicked the link by mistake or actually wanted to read it, that’s three more than I could have hoped for.
I myself have an incurable disease called Retinitis Pigmentosa. The bottom line of this disease is that over time I will slowly loose my eyesight. There is no cure for this at the moment. This disease usually kicks in when the person hits his teens.
When I was twelve I started seeing little black dots in my eyes. I showed it to a doctor and after a few tests, he gave us an explanation which basically meant ‘don’t worry about it too much’ and ‘come back if you think its worse’. I blamed the black dots to an eye accident I had a few years earlier where the pin used to fill a soccer ball flew into my eyes when the ball burst.
From the age of twelve to sixteen I was in boarding school. I didn’t really worry about the problem as I thought it was stable. After I came home when I was sixteen, I started finding it tough to ride my scooter at night, got headaches when the oncoming traffic had their high beams on, found it tough at parties, etc. I knew something was wrong, but I didn’t want to really acknowledge it. As they say ‘Ignorance is Bliss’. I didn’t tell my parents about it because I knew they’d make a fuss over it, go to different doctors, get innumerable tests done, etc. Anyways it continued like that even while I was abroad studying for three years. I’d always manage to find a way to consolidate my position in a difficult situation.
I finally got around to seeing specialist doctor in 2009 when the sight in my left eye deteriorated enough for me to notice. He recommended I go visit an eye hospital in Hyderabad, India, where one of the leading doctors in retina related diseases practices. The tests got done, and I was diagnosed with Retina Pigmentosa or Rod Cone Dystrophy. They told me that it is a genetic problem and at the moment there is no cure for it.
It had a name now… and all I could do is live with it.